We were able to convince the team that K would do better at home recovering. His PFTs were still not that great (45%) but I'm hoping some of that is recovering from surgery.
Home health came tonight and got us all set up for IVs at home and feeding through his gtube. He is on a special medicine that runs 24 hours a day and has a pump (different than some of the more portable IVs we have done in the past) and he is still recovering from surgery. So, even though we are home, he will be resting and recovering and staying in. Sometimes, when we come home, he is able to jump right back into things but this time, it's a slower recovery. We have set up a hospital type setting at home to allow him to recover. BUT we are so happy to be home and he has already eaten better and enjoyed being with family (especially his sissy). We follow up with his team on Tuesday to evaluate how much longer he will be on IVs. We are so glad to be home after 12 days and a pretty big surgery.
Thanks for the prayers and support!