A few weeks ago I got a call from the national CFF office requesting an interview. I was happy to speak with them about our journey with CF and raising money for the foundation.
We did an interview over the phone and then the writer wrote the article from my voice or perspective.
I think she did a nice job and I think the story does a great job of sharing our journey thus far.
I pray it encourages others to get involved and raise money and helps other CF families feel encouraged on their journey with CF.
Click on the link HERE to read our story on the CFF National website
Feel free to share my blog or the link to the article with everyone you know! I have also posted it on FB and you can share it from there too. This will only help spread awareness of what CF is and get the Cystic Fibrosis Foundation out there! One of our biggest obstacles in the CF world is that it just isn't a very "well known" disease because it impacts a "smaller" group of people (vs. other diseases and sicknesses). Our goal is that more people know about it and get involved in volunteering and speaking and raising money so that we can have a CURE in Kaleb's lifetime.
Another obstacle is that CF is an "orphan" disease, which means we get NO government funding. ALL the money for new drugs and a cure is funded by the Cystic Fibrosis Foundation and the partnering drug companies that are working on drugs in the pipeline. The CFF gets their money from what YOU donate and all of the fundraisers you see me promoting and working on all year round. Check out this link HERE to see what your money is going to RIGHT NOW. This link shows the drugs that are currently being worked on and in development. They are in different phases and trials, but they all provide HOPE for both a cure and for providing a better quality of life for CF'ers and KALEB.
We have already begun raising money for the CF walk in May. Last year, TEAM KALEB raised almost $25,000 for CF. We have become a 'national team' with Team Kaleb's in North Carolina, Oklahoma, and California. I don't know how much we will be able to raise this year, but we are going to try our best to raise as much as we can before the walk on May 18.
So far we have raised $6,086 for TEAM KALEB 2013 Great Strides Walk. This is an AWESOME start and we could not have done it without YOU and all of your support.
Check back for various fundraisers between now and May and if you have any ideas or want to help, let me know.
You can always DONATE to Team Kaleb and help us reach our goals for this year. If you want to do that, click HERE and it will take you to our account and you can donate online securely.
TOGETHER we are getting closer to making CF stand for Cure Found!
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