There has been a lot going on.
Some things I can talk about, others I cannot.
One thing is for sure, hospital politics and rules that some person who has no idea how it impacts the patient is putting into place is frustrating. Got to love all the new policies and changes put into place and the things that take the doctors away from actually treating their patients.
Enough of that.
Kaleb has had just about enough poking and prodding. It seems like ever since we got here it has been one test or another.
He does not have C-Diff which is good. We think it is just the combination of antibiotics taking a toll on his tummy so they added some Imodium.
His Toby levels are still not right, but we are figuring it all out. Unfortunately, they are drawing lots of blood from his hand, which is painful.
They are running some kidney tests as he has been having pain and last night it woke him up because it was so bad. Toby can have side effects that impact the kidneys, so we are paying close attention.
I have had the chance to meet some new doctors which are all very nice. I also ran into a father (who is a doc) that I know from volleyball. His daughter played a while back for a team I coached against and it was nice to see a familiar face. I also had a former student on the floor yesterday doing her clinicals for nursing school and I felt old. I used to be her teacher and now she is almost a nurse. It was cool to see her here though.
This stay is particularly hard on us as a family. David and I are struggling emotionally and Kaleb really misses the family being together and school/basketball. Kaleb and I stop several times a day to pray as we feel frustration or sadness or overwhelmed. We know God is in control and is carrying us through, but there are still a lot of emotions.
Our daily donor challenge is going well. I am excited that we are able to do something while here. Raising money for CF makes us feel like we are doing more than just sitting in a hospital. Thank you to everyone who is helping with that! I can't wait to see how much we raise while we are here. We are looking for a donor each day in any amount. If you want to contribute, just click HERE and you can donate to TEAM KALEB. All donors get a shout out!!
We love visitors, just contact me first to make sure it is a good time. Kaleb has been getting tired and needs his rest so it helps if we know to plan when we have people visit. Thank you to everyone who supports us in that way.
So now we just keep an eye on his kidneys and pray for him to start feeling better and for those IV's to start working on the pseudo and pneumonia. Doc is going to bring back his latest sputum culture tonight to make sure we are on the right track.
Please continue to pray, it means a lot. Kaleb loves to hear that people are praying and thinking of him. If you leave a comment here or on FB or email, I read them to him. Thank you!
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